Dealing with a disability is always hard in some ways. But surviving winter seems to take it all to another plain of misery (partially saying that for dramatic flair, but partially serious).
First off, the cold exasperates achy joints. Cold AND rainy? Ugh! My seven-year-old knee injury isn’t letting go of her grudge any time soon. UN-limber limbs and balance issues go together like peanut butter and mustard.
Using a wheelchair obviously means I get less blood circulation throughout my body. While most people walk and stand frequently, my doing so is restricted to transfers (like getting out of my chair and pivoting to sit on the toilet seat) and the 3ish (give or take) times a week I work out and/or squeeze in some assisted walking practice. So, whether I’m freezing my butt off outside or sitting inside, still colder than I’d prefer to be (don’t wanna make the electricity bill too high), I’m lacking the warmth that comes with full-body movement. If I’m sitting outside in the winter while the wind is blowing hard, I’m done. Thank goodness my fiancee’s mom gave me a space heater for Christmas so I can now get more toasty when I’m relaxing at home.
Due to what I mentioned above, and my nerve/blood/etc.’s general inability to travel efficiently to the furthest corners of my body, my calves are literally always cold. Even on a hot summer day, I’ll reach down to touch them, and they’re moist and clammy…yet still cool! But their perpetual iciness reaches new heights in the winter. The coldness in my calves seems to actually radiate and spread into my bones; I wonder at times if they might, on some chilly day, shrivel up and detach from my body.
Sometimes lately, I have this fun, new FA symptom where I’ll be so cold while climbing in bed that my leg muscles tense up uncontrollably. I have to pull on the covers and wait a few seconds for my body to warm up before my muscles relax–then, I can adjust myself into a comfortable position.
And let’s not forget the dreaded shower. It feels sooo nice inside, but opening the door/curtain and feeling that blast of chilly air collide with my damp, warm skin…it’s just cruel.
Needless to say, my plants and I are anxiously awaiting Spring!
What’s your attitude towards and experience with cold weather? Let me know in the comments, and thanks for reading!
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