Category: Disability Experience
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We Interrupt the Regularly-Scheduled Program for a Special Announcement…
Hi, friends. How’s your week been? Mine’s been really fun and a little exhausting. I travelled from NC to PA to attend rideATAXIA Philly 2019 and the 12th annual scientific symposium hosted by FARA (Friedreich’s Ataxia Research Alliance). The ride is a fundraiser for FARA that takes place in different locations across the US every…
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Disability Chat: Discussing the Term “Inspirational”
Hi, friends. Today’s post delves into the sticky topic of disabled people being deemed “inspirational.” Keep reading to see my thoughts on when the statement is and isn’t appropriate, how I react to it personally, etc. I’ve met disabled people all along the spectrum between “bitter” and “happy.” Though some people fall in the extremes,…
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Disability Chat: Struggling to Get Accommodations in College (Story Time!)
Hi, friends. In today’s post, I’ll share some background along with three stories about my struggles to obtain handicapped accommodations in college. [If I told you everything, this post would become a memoir.] This post is still quite long, but I hope my stories are entertaining enough to keep you reading. 😉 If not, the…
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My History With Exercise & How It Affects my Disability
Hi, friends. In today’s post, I’ll share some of my history/experience with my disability and exercise, detailing how exercise can and can’t help me bear my condition and emphasizing the importance of consistency! My History With Exercise I have been dealing with the progressive symptoms of Friedreich’s Ataxia since age 11; I’m 25 years old.…
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Addressing Hopelessness in my Disabled Peers with Spirituality & Productive Activities
Hi, friends. Today’s post is inspired by my peers who also have disabilities (using the term “inspired” loosely). I will address the hopelessness I have seen in recent times then provide some reflections on spirituality and suggestions of productive activities disabled people can do. If you think most disabled people are like me–joyful despite the…
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Disability Chat: Feeling Like a Spectator of Life
Hi, friends. An acquaintance of mine who also has FA posted an article on her blog about adjusting to her scooter. I related to her experiences so much that I immediately hatched the idea for this post. In her post (available here), Kelly talks about her first time at the mall with her scooter. She explains…
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Handicap-Approved Supplies to Enhance Home Workouts (With Exercise Suggestions)
Hi, friends. Though I love using machines in the gym to strengthen my muscles (especially as a wheelchair user), I workout at home a lot, too. In this post, I’m providing a list of handicap-approved supplies that can help you get started with working out at home. If you’re not handicapped, you can probably amplify…
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My Disability Experience: Body Temperature
Hi, friends. Do you ever have weird body temperature issues? Are you always cold or always hot? Do you have certain body parts that get very cold or very hot? Let’s discuss! Overall Body Temperature My overall body temperature is average, though my hands and face are usually cold. What’s odd about me is that…
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Self-Improvement from my Disabled, Christian Perspective
Hi, friends. I have read at least 25 posts about New Year’s resolutions this year, and I feel inspired by your words. Of course, I should expect no less from the community of lovely, intelligent, honest people here. In various ways, many of you made a poignant point–we should reassess how we think of New…
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My Disability Experience: Fatigue
Hi, friends. In the first installment of this series, I discussed falling, and today’s topic is fatigue. Have you ever felt plagued by chronic exhaustion due to disability, insomnia, stress, etc? Let’s discuss!
Retrospective Lily 