Category: Disability Experience
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Disability Chat: Inclusive Language, Words vs. Actions, & Awareness
Hi, friends. I’ve started a series about the different aspects of my disability that I grapple with (My Disability Experience), but now I’m starting a series about social perceptions and other issues on disability. These posts may be controversial sometimes, especially ones that rebut certain attitudes of my disabled peers. I hope you’ll appreciate my…
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FARA Philadelphia Symposium 2018–Pics & Reflections
Hi, friends. I have a disability called Friedreich’s Ataxia. FARA–Friedreich’s Ataxia Research Alliance–is an organization of doctors, patients, scientists, pharmaceutical companies, patients’ friends and family, etc. that works to advocate, raise money, and search for treatments and a cure for FA. This is my fifth year attending the annual conference in Philadelphia. [Cover Photo Credit:…
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My Disability Experience: Falling
Hi, friends. I have always appreciated posts where people shared their struggles in life. Exposing our vulnerabilities helps us relate with each other. This post is the start of a new series where I speak about different aspects of my life with a disability (Friedreich’s Ataxia).
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Bearing My Debilitating Cross With Joy
Hi, friends. When catching up with an old friend at a United Methodist event for Rise Against Hunger, my disability came up in conversation, and the friend said something like, “I’m really sorry you have to go through that.” I responded, “Sometimes, I think I’m too happy for a handicapped person.” We laughed about that,…
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Why & How the Physically Limited Should Maintain Leg & Hip Muscles
Hi, friends. For those who struggle with standing, balancing, or walking due to illness and/or old age, daily minutiae becomes a huge burden once the leg and hip muscles atrophy. Using the toilet, taking a shower, simply getting from point A to point B–every little obstacle is a mountain. While the progression of time or…
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Adventures of a Girl in a Wheelchair & Children at Church
Hi, friends. My church is small and rural, but a few months back, a lady began attending with her granddaughters, aged 6 and 10. I hardly remember how it escalated to this point, but those girls love me, and I love them. I’ve experienced some joyful moments as I’ve spent time with them and realized…
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Petty Pity Parties (as a Disabled Christian)
Hi, friends. Do you ever wallow in your own self-absorbed pity party? Do you ever get frustrated because life isn’t fair? Been there, done that. Shoutout to T.R. Noble for encouraging Christian bloggers to be more open and honest. Reading this post a couple days after writing it makes me want to delete it because it’s…
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The Importance of Strength (Especially for the Physically Limited)
Hi, friends. Did you know that people with a deficiency in one of the five senses sometimes exhibit a higher acuteness with their other senses? Our bodies are hard-wired for survival, and generally, adaptation and compensation are necessary for survival. Exercise is healthy and beneficial for anyone, but exercise is a crucial component to adaptation/compensation…
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How I Met My Personal Trainer
Hi, friends. Does anyone else have a love-hate relationship with Timehop on Facebook? My memories are either photos that recall good times or cringey statuses/shares. Gah. Anyways, a status popped up in my memories from five years ago…”First day with a legit personal trainer. Hellz yeah.” Yes, I used to say “hellz.” It’s hard to…
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Relinquishing Control (as a Disabled Christian)
Hi, friends. Ever heard the saying “if you want it done right, you have to do it yourself?” While most people wish they could control everything, Christians know that even when we create the illusion of control, God is still the creator and the judge.
Retrospective Lily 